Neurodivirgence – DownSideUp

ONE | Wherein I am no longer my own worst enemy.

PART ONE – SCENE ONE
Saturday, September 23rd, 2023

FADE IN:
EXT. BEACH BAR, NIEUWPOORT BELGIUM – DAY

I am sitting at a beach bar in Nieuwpoort, the day after another one of my favourite nights and shows of the year. I have several, they keep on accumulating. You’d think that at some point I wouldn’t be yelling ‘THIS WAS THE BEST GIG OF THE YEAR’, but here we are.

I was on the way to the butcher for a delicious meaty treat for myself (I know, I am an awful animal lover!) and wanted to walk with the North Sea in full view. I followed my gut away from the busy looking bit of the dike of Nieuwpoort beach. Seeing the squirming of all the sunny Saturday tourists made me stop in my tracks, think to myself ‘NOPE, not today’ and swiftly turn the other way. The reward for trusting my gut feeling was nearly instant. After noping out of the first bar (WAY too loud and hip for my taste) I settled on the second beach bar in sight. Swing chairs with a dune and ocean view? Yes, please! I settled in, put my headphones on and fired up the Spotify playlist I started with my good friend Jo.

How synchronicitous that this song should come on while writing this. The lyrics are etched into my soul.

Took me two years to write this song, I wanted it perfect, no wrinkles in it.
Took me a long time to come clean, To be honest, the truth’s so ugly.

No matter how far I run, I always end up back here.
No matter how far I go, I always end up back here.
In the mirror, in the mirror, in the mirror, only in the mirror.

I always felt so out of placе, In a crowded room, I speak too soon
Yeah I put a big smilе on my face, I can’t let them know it’s all for show, No

I’m tired of running, I’m tired of running, I’m tired of running, I’m tired of running, I’m tired of running, I’m tired of running, I’m tired of RUNNING
The Interrupters – In the Mirror

I saw The Interrupters earlier this year (in the chaotic gig-filled month of June I am still scrambling to write fully about.) and broke my voice while singing along to this song. It was yet another cathartic experience in this insanely amazing year of music, that keeps piling those moments on top of each other. But I digress.

As I ~~sit~~ lie here, contentedly swinging in my beach chair while writing, a gentle sea breeze blows through my hair. I realise I am no longer my own worst enemy. In fact, I am thoroughly enjoying my own company. No outside stressors or responsibilities. Just me myself and I, tuning the world out by way of The Best Playlist in the World. The salty sea air in my nose, my notebook at hand and barely any humans in sight. All I see is sandy dunes, a lot of sunshine with a few clouds, the beautiful North Sea and some kites floating merrily in the wind.

It all emphasises how sorely I needed this getaway after nearly three years of constant stress, darkness & self-doubt. I’ve resurfaced after one of the worst periods in my life in general. First there was the burnout and subsequent depression that I could not seem to crawl out of. Followed by a stupid incident in which I broke my foot and the slow healing process over the gruellingly boring summer of 2021. Then a string of injuries and illness in the family, resulting in the caring for (and about) both my mother and father. (Which left the summer of 2022 without music as well, aside from Punk in Drublic.)

Then came the death of my father around this time last year, and another tumble down that jet black abyss followed. The music and Purple People saved me from that one. As I was slowly crawling out of that hole, I ended a 17 year long relationship and started a nine month long, intense group therapy process which I am now halfway through. I might not have been working, but my mind never seemed to get a moment’s rest either way.

How the fuck did I ever expect to get myself out of a burnout that had been in the works for YEARS, while still burning the candle at both ends? It was delusional to think I could have done it alone. Nevertheless, I am sure that this sequence of events was not without meaning in and of itself. I am sure to my core I needed to pass through all of that to end up here. Both figuratively and literally speaking. I needed to end up here, at this exact moment in time, in this particular place in space. I will look back on this and see what a huge step it will have been in my healing process. I am beyond sure of that.

Over the last couple of years I had been having these weird anxiety filled stress dreams, about being near the sea and not finding my way to the beach. I have been YEARNING to put my feet in the ocean and feel the wind in my hair since before the lockdown of 2020. I have finally arrived and made it to my own private beachfront holiday.

I am bathing myself in profoundly precious memories in the coastal town where my grandparents bought an apartment the year I was born. I spent every summer of my childhood here with my family. I am treasuring those echoes of the past, of my inner child deep within. It’s in the smells of the sand & sea, of the gasoline in the parking garage below the apartment. It’s in the view of the beautifully repainted waterfront property with the words Inch’ Allah embedded in the stone. It always links back to the music, in this case the song by Adamo, an artist I dearly love courtesy of my mother and grandmother.

Being here on this second day of Autumn, enjoying probably one of the last Indian summer days of the year, feels positively magical. I spent a chaotic but intensely rewarding day yesterday getting over a LOT of fears, both real and imaginary. (Fear of heights and roller coasters, group dynamics, traffic and bad weather combined with very tight schedules and timelines. A right mess for a neurodivergent person such as myself.) It morphed into one of the best days and nights of 2023. (And that is saying something!) I was surrounded by good friends and like minded souls in the midst of the all encompassing piece of life that is The Music.

I feel like I am finally discovering myself as an actual person. And most importantly, I like that face staring back at me in the mirror, for the first time in maybe EVER.

'The most beautiful thing you can become is yourself' - picture of Julie taken (in the mirror) at Trefpunt Ghent — *‘The most beautiful thing you can become is yourself’ – taken (in the mirror) at Trefpunt Ghent*

That all of this should happen NOW and HERE is nothing less than prophetic. It is fate. It is destiny. It is another bit of proof I am walking the right road. MY road. The road I was meant for from the start. I’ve been walking it all along, but I just now passed the bit in between where there were no lights, signage or roadmarks. It feels good to be on the other side. To be able to breathe and let go of the anxieties that have been stuck to me for all these years. I see a light at the end of the tunnel and I am walking towards it. Smiling to myself. Following where the music takes me next.

A promise to no longer be my own worst enemy. A story about neurodivergence and acceptance in three songs.

I got my ADHD diagnosis last year at the ripe ‘old’ age of 36. In learning more about it, a LOT finally started to make sense. Why the life I was building for myself never really seemed to fit me. Why I never seemed to reach my own potential. However, there was still a puzzle piece missing. I got tested for both ADHD & Autism Spectrum Disorder at the same time. I had become so adept at masking myself, I did not get diagnosed as being on the spectrum. In subsequently talking to people, and reading up about autism and neurodivergence, I realised that diagnosis was wrong. I am both autistic and have ADHD. All those little quirks and difficulties I experienced all through life suddenly became one of two. The constant battle in my head between order and chaos was suddenly very clear.

My life was made of masks, one for every occasion. First I hid my true self away, out of fear of not being accepted. Of being seen as weak. Of being perceived as weird. Of being thought of as a failure. Of being known as difficult. I became the person I thought I should be, not the person I actually was. It was a recipe for disaster. I was a ticking time bomb waiting to erupt. Last year I finally learned why everything always seemed SO much harder for me. Life in general, school, work and interpersonal relationships.

But when I learned about, and started to accept and work around my (self)diagnosis as AuDHD, that became a mask in and of itself. I started to apologise for myself and my way of thinking about things and my way of doing things because of what those disorders meant to me. I have ADHD so I must be LOUD and OBNOXIOUS, SORRY. At the same time I am autistic, but because I am such a LOUD AND OBNOXIOUS ADHD’er, I didn’t feel like I had the right to claim the space, peace and tranquillity I needed. It was a constant struggle with myself and not in the least, with the people around me.

This year, right around the time I was rediscovering myself in the music and the words, I started group therapy in a clinic near me. I am so unbelievably grateful for having found that path. In the last three and a half months I have learned SO much about myself and moreover, myself in the world around me. It has been challenging and confronting at every turn. But I am slowly learning to understand myself and treat myself with the same compassion and empathy with which I approach other people. It’s a process with big ups and downs, but it is so unbelievably rewarding.

It really should not have come as such a surprise to me that I am my own worst enemy. I make life so much harder on myself by trying to do everything right. For myself, but especially for those around me. I adapted a mask very early on, hid myself away and pretended to be strong for years. Because I thought that was helping those around me, not having to worry about me and the dark abyss I was tumbling into. In reality, by pretending to be made of stone, I continued the fallacy that we should all be made of granite. That there is no room for us to crumble, even just a little.

I am now slowly learning that vulnerability is a strength and not a weakness. How it’s okay to not be okay. And how in showing and talking about my own struggles, others learn to find the words to describe their fragility and pain as well. There is beauty in recognition and unity in commiseration. We all struggle with things, why not struggle together? A sorrow shared is a sorrow halved. Because in sharing and commiserating, we can all grow together.

This blog started as a simple foreword to a piece about music. I was going to write about finding synchronicity in music again thanks to two shows by Gipsy Rufina & Kiel Grove. (Don’t worry, I WILL get to them!) How reconnecting with Ann, whom I met at the James Hunnicutt & Whiskey Dick gigs, led me to watch Coco again and what that meant to me in this dark September month. But the foreword developed a mind of its own and turned into this. It was meant as a sort of apology to all the bands and artists I promised my words to over the last couple of months. But in letting loose and just following the words, I realise I have nothing to apologise for.

There’s something to be said for continuity and following the precise sequence of events. It’s nice and neat and comprehensible. (Some might even call it Nice & Accurate!) It is expected. I’m usually a stickler for doing things by the rules. It brings order to my disorderly brain. But I keep losing myself in trying to do everything perfectly. In thinking more of what my actions (or inactions) might signify to others, than in realising how hard those thoughts are weighing ME down.

I am trying to break away from that to preserve my own sanity and build myself back up in the best way possible. So I don’t get burnt out from the thing that was curing my burnout. So for now I am done following the rules and promises I made in my head, because they were preventing me from telling the stories.

From now on the stories will be posted as they present and write themselves in my head. The stories recorded during this magical, musical summer (and beyond) WILL get told with all the love I felt while experiencing it. But in their own time, in my time.

Here’s to chaos and anarchy. Here’s to doing things my way.

RESIST. UNLEARN. DEFY.

An aside about the songs: The three songs in this blog are by a band that has a very special significance to me. Remember that message board I wrote about in my last blog on Terry Pratchett? Well, it was called Incuboard and was dedicated to Incubus. Sort of, anyway. I met some very special people there and I still remember that period very fondly. I lost track of the band a little around when they brought out Light Grenades. But I will never lose track of their previous albums and songs. They helped make me who I am to this day. They ring as true now, as they did back then.

I subconsciously chose three songs off the same album Make yourself. This was not planned, even though the title of this blog was inspired by the title song from that album. Synchronicity I guess. In threes, as always. The cover picture is inspired by a lovely art book the singer made, called White Fluffy Clouds. His art very much inspired my own. The piece below was my vague interpretation of the cover art of his book.

Tag: Neurodivirgence

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